Area of Research:
Dementia-related care in the community and under a public health crisis
EVIDENCE TO ASSESS THE IMPACT OF COVID-19 ON COMMUNITY-BASED DEMENTIA CARE IN NOVA SCOTIA
This project addresses the pressing need for information that can be used to assess the impact and health equity implications of COVID-19 on community supports for vulnerable older adults living with multiple chronic conditions, including dementia, and their family friend caregivers in Nova Scotia. Within the current context of social distancing and social isolation, evidence about the resources, services and supports that make it possible for dementia care to continue at home in the community is lacking. This integrated Knowledge Translation (iKT) project will contribute to, clarify and enhance the best evidence-in-the-moment about dementia-relevant supports and program service delivery by using qualitative social scientific methods to collect and synthesize data on dementia-relevant formal health system and local grassroots resources, services and supports. The new knowledge generated from the work will develop a baseline that can be used to assess the impact of COVID-19 on service delivery both during and post-pandemic, and support efforts to transition from emergency measures and adjust to the post-COVID-19 ‘new normal’. Drawing on interviews with diverse populations of people living with dementia and theirfamily/friend caregivers, we will create a snapshot of service realities for socially and medically vulnerable populations. The documentation of service realities will provide a crucial resource for current and future efforts to track, analyze, interpret and address issues of health (in)equity for older adults living with dementia and their caregivers in the province. Project results and outputs will highlight gaps in existing service provision, and prioritize areas for action in accordance with resource availability within a dynamic and changing context. It is critical that this information be captured and collated now, while it is still accessible (particularly where local grassroots supports are included, which may lack formal documentation or public archiving). This research has been approved by St.F.X. University, Mount Saint Vincent University, and Dalhousie University Research Ethics Review Boards.
For more information on what dementia is: https://alzheimer.ca/en/about-dementia/what-dementia
Identify leading evidence and provincial resources, services and supports for people living with dementia and their caregivers can actually access in NS under the emergency constraints of COVID-19. This information is crucial in supporting vulnerable Nova Scotians in sheltering in place and avoiding emergency hospitalizations and institutionalization during a time when the capacity of hospitals and long-term care facilities is already under threat. The project will highlight the centrality of the continuing care sector within the COVID-19 Response, with a focus on the challenges for, and contributions of, family/friend caregivers and community resource, service and support providers. This rapid research project will also support recognition of the structural determinants and health inequities that shape whether and how caregivers access and experience supports needed to provide care at home during the pandemic.
LINKS TO VOLUNTARY, CONFIDENTIAL ONLINE SURVEYS (ACTIVE TO FEBRUARY 2021)
Do you live or work in Nova Scotia? Do you live with dementia or support dementia care as a family/friend, paid care provider or community group? We want to hear from you! We want to understand how COVID-19 has affected dementia services and supports for people living with dementia and supporting care in community. You are invited to complete a voluntary, confidential survey below. What you tell us in the survey will help us understand how COVID-19 has affected services and supports you get or know of.
Click the link that most applies to you to take the survey:
Link for people living with dementia or providing care to a friend or family member with dementia in Nova Scotia: https://stfx.qualtrics.com/jfe/form/SV_5dSRc4x02aGcFZb
Link for providers of community-based dementia-related health, social or community services and supports in Nova Scotia: https://stfx.qualtrics.com/jfe/form/SV_9AhliQ3e8xRgXXf
INTERVIEWS WITH PEOPLE LIVING WITH DEMENTIA, FAMILY/FRIEND CAREGIVERS, SERVICE & SUPPORT PROVIDERS (ACTIVE TO FEBRUARY 2021)
We are also hoping to speak with people about their experiences receiving, supporting and providing care. A $25 honorarium will be offered to people living with dementia and caregivers who participate in interviews. What we learn from this research will be used to make care better for individuals living with dementia.
- Bradbury, K., Moody, E., Aubrecht, K., & Sim, M. (November 7, 2020). Dementia care under COVID-19 and infectious disease pandemic restrictions. GSA 2020 Annual Scientific Meeting Online: Turning 75: Why Age Matters. Online.
- Aubrecht, K., Burke, R., Gahagan, J., Dowling, L., Kelly, C., Hande, M.J., Hardie, S., Keefe, J., & Rock, B. (November 5, 2020). Health equity impacts of COVID-19 policies on dementia-relevant community services: A SGBA+ policy scan. GSA 2020 Annual Scientific Meeting Online: Turning 75: Why Age Matters. Online.
Students and Trainees
Primary Supervisor: Dr. Katie Aubrecht
Program, Institution: BASc Health, St. Francis Xavier University
Research interests: Importance of relationships and human interaction for people with dementia
Primary Supervisor: Dr. Barbara Hamilton-Hinch
Program, Institution: BSc Medical Sciences, Dalhousie University
Research Interests: Ethical and social impacts of the COVID-19 pandemic and resulting policies/measures on Dementia care in the black & immigrant communities
Primary Supervisor: Dr. OmiSoore Dryden
Program, Institution: BSc Health Promotion, Dalhousie University
Research Interests: Systematic racism within Nova Scotia, the Deaf and hard of hearing community in NS, and research on African Nova Scotian children within N.S. public school systems
Primary Supervisor: Dr. Elaine Moody
Program, Institution: Nursing (accelerated stream), Dalhousie University
Research Interests: Scoping review methodology, community care, aging, dementia
Primary Supervisor: Dr. Katie Aubrecht
Program, Institution: MA, Family Studies & Gerontology, Mount Saint Vincent University Research Interests: Dementia caregiving, policy, health equity